Hello from Kansas City, the geographical center of the US, where the American Society for Bioethics and Humanities is holding its annual meeting! Several PIRCers are here presenting research and learning from colleagues in bioethics.
Michelle McGowan is speaking on reproductive ethics to the Reproduction Affinity Group of ASBH, Saturday October 21st at 6pm. Marsha Michie is delivering a paper, “Scaffolding Translation: A Model for Ethical and Social Guidance of Translational Genomic Medicine,” Saturday at 2pm, based on her research on prenatal cell-free DNA screening. Jessica Mozersky and Stephanie Kraft are speaking on other topics: Jessica on “How Do Clinical Research Coordinators Actually Gain Knowledge of Good Clinical Practice?” Sunday at 11am, and Stephanie as part of a panel on “Beyond the Therapeutic Misconception: The Challenges of New Misconceptions About Research,” Thursday at 4pm.
You can peruse the whole program for the 2017 ASBH meetings at asbh.org.
Many of us PIRCers came out of NIH-funded ELSI training programs, so we’re proud to have our individual and collaborative ELSI work represented at this year’s ELSI Congress at the Jackson Labs in Farmington, Connecticut.
Technology for genetic modification has leaped forward in the past few years–thanks largely to the discovery and development of CRISPR, a new method of using bacterial enzymes to target and precisely cut DNA. In the wake of these developments, a recent article in The Atlantic asks, “Will Editing Your Baby’s Genes be Mandatory?” The article argues that as gene “editing” becomes safer and more reliable, modifying the genome of a fetus will eventually become commonplace, and parents who don’t utilize this option will be accused of endangering their child’s health. Continue reading Mandating designer babies?
“The [UK] Royal Society of medicine is debating whether embryonic gene editing will improve the health of future generations. So is this the future of medicine? Or could it be the thin end of the wedge… the first step in the direction of designer babies.
Speaking against the motion is the actress Kiruna Stamell who has dwarfism. She thinks society should be working to make it easier for people to live with a disability and wonders why for global warming’s sake we aren’t gene editing people to be her size.” See the video.
“An influential science advisory group formed by the National Academy of Sciences and the National Academy of Medicine on Tuesday lent its support to a once-unthinkable proposition: clinical efforts to engineer humans with inheritable genetic traits.
In a report laden with caveats and notes of caution, the group endorsed the alteration of human eggs, sperm and embryos — but only to prevent babies from being born with genes known to cause serious diseases and disability, only when no “reasonable alternative” exists, and only when a plan is in place to track the effects of the procedure through multiple generations.” Read More.