2017

Is Mitochondrial Donation Germ‐Line Gene Therapy? Classifications and Ethical Implications
Ainsley J Newson, Anthony Wrigley. Bioethics.

Conflicts of interest in genetic counseling: acknowledging and accepting.
Katie A Stoll, Amanda Mackison, Megan A Allyse and Marsha Michie. Genetics in Medicine.

Expanding Use of cfDNA Screening in Pregnancy: Current and Emerging Ethical, Legal, and Social Issues
Lindsay Parham, Marsha Michie, Megan Allyse. Current Genetics Medicine Reports.

Providing Unrestricted Access to Prenatal Testing Does Not Translate to Enhanced Autonomy
, & . American Journal of Bioethics.

Modern Pregnancies and (Im)Perfect Babies
Stephanie A. Kraft. American Journal of Bioethics

Dr. Pangloss’s Clinic: Prenatal Whole Genome Sequencing and a Return to Reality
, & American Journal of Bioethics.

Mandating Moral Reflection?
& American Journal of Bioethics.

2016

Clinical implementation of NIPT: Understanding the role of non-specialist provider education
Subhashini Chandrasekharan; Subarna Pradhan; Anthony Hung; Mary Anne McDonald. Prenatal Diagnosis. 

Barriers to clinical adoption of next generation sequencing: Perspectives of a policy Delphi panel
Donna A. Messner, Jennifer Al NaberPei KoayRobert Cook-DeeganMary MajumderGail JavittPatricia DeverkaRachel DvoskinJuli BollingerMargaret CurnutteSubhashini ChandrasekharanAmy McGuireApplied and Translational Genomics.

Sequenom v. Ariosa — The Death of a Genetic Testing Patent
Robert Cook‑Deegan and Subhashini Chandrasekharan. New England Journal of Medicine.

Non-invasive Prenatal Testing and the Unveiling of an Impaired Translation Process
Murdoch, B., Ravitsky, V., et al. Journal of Obstetrics and Gynaecology Canada.

With Rapid Uptake of Noninvasive Prenatal Screening, Many Question its Impact on Abortion
Heger, M. GenomeWeb.

Impact of the increased adoption of prenatal cfDNA screening on non-profit patient advocacy organizations in the United States.
Meredith, S, Kaposy, C, Miller V.J., Allyse, M.A., Chandrasekharan, S, Michie, MM, and the Prenatal Testing PAG Coalition. Prenatal Diagnosis

Informed decision-making about prenatal cfDNA screening: As assessment of written materials.
Michie, M, Kraft, S.A., Minear, M.A., Ryan, R.R., Allyse, M.A. In press. Ethics, Medicine & Public Health: Special Issue: Ethics, Medicine and Genetics.

“I think we’ve got too many tests!”: Prenatal providers’ reflections on ethical and clinical challenges in the practice integration of cell-free DNA screening.
Gammon, B, Kraft, S.A., Michie, M.M., Allyse, M.A. In press. Ethics, Medicine & Public Health: Special Issue: Ethics, Medicine and Genetics.

Experiences of Mandarin-speaking and English-speaking women of undergoing non-invasive prenatal genetic screening.
Li, G. D. and Allyse, M.A. In press. Ethics, Medicine & Public Health: Special Issue: Ethics, Medicine and Genetics.

Noninvasive Prenatal Screening (NIPS) for Fetal Aneuploidies. (Book chapter)
Allyse M.A., Highsmith W.E. Jr., Borowski K.S., Wick M.J. Diagnostic Molecular Pathology.

“The Top Priority Is a Healthy Baby”: Narratives of Health, Disability, and Abortion in Online Pregnancy Forum Discussions in the US and China.
Li G, Chandrasekharan S, Allyse M. Journal of Genetic Counseling.

Non-invasive prenatal testing in the non-Western context.
Vardit Ravitsky, Jessica Mozersky, Marsha Michie, Rayna Rapp, Megan Allyse, and Subhashini Chandrasekharan. BioNews.

Non-Invasive Prenatal Testing (NIPT): Identifying Key Clinical, Ethical, Social, Legal and Policy Issues.
Vardit Ravitsky. Nuffield Council on Bioethics.

Beyond the Genetic Diagnosis: Providing Parents What They Want to Know
Robert A. Saul and Stephanie Hall Meredith. Pediatrics in Review. 

The use of noninvasive prenatal testing in obstetric care: educational resources, practice patterns, and barriers reported by a national sample of clinicians.
Ruth M. Farrell, Patricia K. Agatisa, Mary Beth Mercer, Ariane G. Mitchum, Marissa B. Coleridge. Prenatal Diagnosis.

 

Non-invasive prenatal testing for fetal chromosome abnormalities: review of clinical and ethical issues.
Jean Gekas, Sylvie Langlois, Vardit Ravitsky, François Audibert, David Gradus van den Berg, Hazar Haidar, and François Rousseau. Applications of Clinical Genomics.

Will Personal Genomic Information Transform One’s Self?
Fishman, J and McGowan, M. Barbara Prainsack, Silke Schicktanz (eds). Genetics as Social Practice: Transdisciplinary Views on Science and Culture.

Beyond the Genetic Diagnosis: Providing Parents What They Want to Know.
Saul RA, Meredith SH. Pediatr Rev.

Being Human: The Ethics, Law, and Scientific Progress of Genome Editing.
Newson, A and Wrigley, A. Australian Quarterly.

Genomic Testing in The Paediatric Population: Ethical Considerations in Light of Recent Policy Statements.
Ainsley J. Newson, Lisa Schonstein. Molecular Diagnosis and Therapy.

Embryology policy: Revisit the 14-day rule.
Insoo HyunAmy Wilkerson and Josephine Johnston. Nature.

Online direct-to-consumer messages about non-invasive prenatal genetic testing.
Farrell RAgatisa PKMercer MSmith MB. Reproductive Biomedicine & Society Online.

Non-Invasive Prenatal Testing: Review of Ethical, Legal and Social Implications
Haidar H, Dupras C, Ravitsky V. BioéthiqueOnline.

The Down Syndrome Information Act: Balancing the Advances of Prenatal Testing Through Public Policy.
Leach M. Intellectual and Developmental Disabilities.

Spanish-and English-Speaking Pregnant Women’s Views on cfDNA and Other Prenatal Screening: Practical and Ethical Reflections.
E Floyd, MA Allyse, M Michie. Journal of Genetic Counseling.

The Age of Unreason: A review of Embryos Under the Microscope by Jane Maienschein.
Allyse M. 2016. American Journal of Bioethics.

“This lifetime commitment”: Public narratives of disability and non-invasive prenatal genetic testing.
Steinbach R, Michie M, Allyse M, Liu E and Cho MK. Accepted. American Journal of Medical Genetics Pt A. 

2015

Cherchez la femme: Reproductive CRSPR and Women’s Choices.
Allyse M, Michie M, Mozersky J and Rapp R. 2015. American Journal of Bioethics.

Prudentia Populo: Involving the community in biobank research.
Allyse M, McCormick J and Sharp R. 2015. American Journal of Bioethics.

Global perspectives on clinical adoption of NIPT.
Minear MA, Lewis C, Pradhan S, Chandrasekharan S. Prenatal Diagnosis. 35: 10, 959–967

Too Much, Too Soon? Commercial Provision of Non-Invasive Prenatal Testing for Sub-Chromosomal Abnormalities and Beyond.
Allyse M and Chandrasekharan S. 2015. Genetics and Medicine. 

Noninvasive Prenatal Genetic Testing: Current And Emerging Ethical, Legal, And Social Issues.
Minear MA, Alessi S, Allyse M, Michie M, Chandrasekharan S. 2015. Annu. Rev. Genomics Hum. Genet, 16.

Hoping Someday Never Comes: Deferring Ethical Thinking about Non-Invasive Prenatal Testing.
Mozersky, J. In PressAJOB Empirical Bioethics. 

Old Questions, New Paradigms: Ethical, Legal and Social Complications of Non-Invasive Prenatal Testing.
Michie, M and Allyse, MIn Press. AJOB Empirical Bioethics.

“Don’t want no risk, don’t want no problems”: Public understandings of the risks and benefits of novel prenatal technologies in the United States.
Allyse M, Sayres LC, Michie M, Goodspeed T and Cho M. In Press. AJOB Empirical Bioethics.

Non-invasive prenatal testing: a review of international implementation and challenges.
Allyse M, Minear MA, Berson E, Sridhar S, Rote M, Hung A, Chandrasekharan S. International Journal of Women’s Health 7, 113.

 Trustworthy Research Institutions: The Challenging Case of Studying the Genetics of Intelligence.
Johnston J, Banerjee MP and Geller G. 2015. Hastings Center Report.

Reducing Rate of Fertility Multiples Requires Policy Changes.
Johnston J, Gusmano MK, and Patrizio P. 2015. JAMA Pediatrics.

Is There Room for Not Knowing ‘Everything’?
Johnston J. 2015. Hastings Center Report

Findings of Nonparentage: A Case for Autonomy
Michie M, Allyse M. Pediatrics 135 (1), e284-e285

Conflicts of interest and effective oversight of assisted reproduction using donated oocytes
Valarie K Blake, Michelle L McGowan, Aaron D Levine. The Journal of Law, Medicine & Ethics

2014

Non-Invasive Prenatal Testing: A review of international implementation and challenges
M Allyse, MA Minear, E Berson, S Sidhar, M Rote, A Hung, S Chandrasekharan. 2014. International Journal of Women’s Health.

Noninvasive Prenatal Testing Goes Global
S Chandrasekharan, MA Minear, A Hung, M Allyse. 2014. Science Translational Medicine 6 (231), 231fs15-231fs15

Attitudes towards non-invasive prenatal testing for aneuploidy among US adults of reproductive age
M Allyse, LC Sayres, TA Goodspeed, MK Cho. 2014. Journal of Perinatology 34 (6), 429-434

Do recent US Supreme Court rulings on patenting of genes and genetic diagnostics affect the practice of genetic screening and diagnosis in prenatal and reproductive care?
Subhashini Chandrasekharan, Amy L. McGuire, Ignatia B. Van den Veyver. 2014. Prenatal Diagnosis.

Demographic and Experiential Correlates of Public Attitudes Towards Cell-Free Fetal DNA Screening
LC Sayres, M Allyse, TA Goodspeed, MK Cho. 2014. Journal of Genetic Counseling, 1-11

In Search of Real Autonomy for Fertility Patients. Johnston J, Gusmano MK, and Patrizio P. 2014. Health Economics, Policy and Law

Preterm Births, Multiples, and Fertility Treatment. Johnston J, Gusmano MK, and Patrizio P. 2014. Fertility and Sterility

 

2013

Best ethical practices for clinicians and laboratories in the provision of noninvasive prenatal testing
MA Allyse, LC Sayres, M Havard, JS King, HT Greely, L Hudgins, J Taylor, K Ormond. 2013. Prenatal Diagnosis 33 (7), 656-661

Commercial landscape of noninvasive prenatal testing in the United States
Ashwin Agarwal, Lauren C Sayres, Mildred K Cho, Robert Cook-Deegan and Subhashini Chandrasekharan. 2013. Prenatal Diagnosis.

Imperfect informed consent for prenatal screening: Lessons from the Quad screen
ML Constantine, M Allyse, M Wall, R De Vries, TH Rockwood. 2013. Clinical Ethics.

Why We Should All Pay for Fertility Treatment. Johnston J and Gusmano MK. 2013. Hastings Center Report

The NIH Stem Cell Registry: An Absence of Gamete Donor Consent. Wilkerson A, Wongsatittham K and Johnston J. 2013. Cell Stem Cell

 

2012

Cell-free fetal DNA testing for fetal aneuploidy and beyond: clinical integration challenges in the US context
M Allyse, LC Sayres, JS King, ME Norton, MK Cho. 2012. Human Reproduction 27 (11), 3123-3131

Integrating stakeholder perspectives into the translation of cell-free fetal DNA testing for aneuploidy
LC Sayres, M Allyse, MK Cho. 2012. Genome Medicine, 4 (6), 49

Translating cell-free fetal DNA technology: structural lessons from non-invasive RhD blood typing
TA Goodspeed, M Allyse, LC Sayres, ME Norton, MK Cho. 2012. Trends in Biotechnology 31 (1), 7-9

In the public interest?
LC Sayres, M Allyse, TA Goodspeed, MK Cho. 2012. Science Translational Medicine 4 (144), 144fs23-144fs23

Normalizing Atypical Genitalia: How a Heated Debate Went Astray. Johnston J. 2012. Hastings Center Report.

 

2011

Cell‐free fetal DNA testing: a pilot study of obstetric healthcare provider attitudes toward clinical implementation
LC Sayres, M Allyse, ME Norton, MK Cho. 2011. Prenatal Diagnosis 31 (11), 1070-1076

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