This study explores the experiences and attitudes of US-based prenatal care providers with non-invasive prenatal testing (NIPT). Participants include genetic counselors, maternal fetal medicine specialists, obstetricians and medical geneticists. In it’s most recent phase, PIPS is recruiting members of the American Congress of Obstetricians and Gynecologists from each of the 50 states to compile a picture of how NIPT interacts with state Medicaid programs, private insurance, state screening programs and variations in population and socio-economic status.
This study is not currently recruiting.
Papers from this study:
Gammon, B., Kraft, S.A., Michie, M., and Allyse, M. (2016) “I think we’ve got too many tests!”: Prenatal providers’ reflections on ethical and clinical challenges in the practice integration of cell-free DNA screening. Journal of Medicine, Ethics, and Public Health.
Presentations from this study:
Noninvasive Prenatal Testing Across America: Lessons Learned from a Nationwide Interview Study of Prenatal Care Providers, CEER Western Regional Meeting, Seattle, WA, 2/23/2015
Disparities in Access to Noninvasive Prenatal Genetic Screening: Lessons Learned from a Nationwide Interview Study (poster), ACMG Annual Clinical Genetics Meeting, Salt Lake City, UT, 3/26/2015
Reflections of Prenatal Care Providers on the Clinical Implementation of Noninvasive Prenatal Genetic Screening (poster), International Conference on Prenatal Diagnosis and Therapy, Washington, DC, 7/15/2015
U.S. Physicians’ Perspectives on Noninvasive Prenatal Screening: “It Just Seems Sort of Crazy That It Works”, PIRC Stakeholder Perspectives on Noninvasive Prenatal Screening Symposium, Washington, DC, 7/16/2015
“It Just Seems Sort of Crazy That It Works”: Physician Perspectives on the Ethics and Clinical Translation of Noninvasive Prenatal Genetic Screening, ASBH Annual Meeting, Houston, TX, 10/24/2015