QUIPS used an innovative methodology call Q-sorting to compare the underlying values surrounding complex prenatal genetic information across certain populations. In this case, we compared the views of Test Developers, Maternal Fetal Medicine Specialists, Medical Geneticists, Genetic Counselors, Obstetricians, Pregnant Women, and Women Who Have Received an Invasive Microarray Procedure. Each participant was asked to rank a series of 55 statements from the literature in order of how well it matches their own views. These sorts were then compared to reveal areas of agreement and variation between participant populations.
Although microarray analysis is not currently available non-invasively, there are signs that this level of analysis may soon be available non-invasively. This study sought to proactively understand where areas of ethical and clinical concern are located.
Papers and Presentations from this study:
Prenatal Information Research Consortium 