The KEAPS study was a longitudinal survey study of patient experiences with undergoing counseling for, and receiving results of, non-invasive prenatal testing. KEAPS recruited at two prenatal clinics in the Kaiser Southern California network; participants received a survey after their prenatal visit and before they received their prenatal test results. If they accepted NIPT, they also received a second survey after they have received their results. KEAPS included multiple measures of patient understanding, decisional satisfaction and decisional conflict. Because all Kaiser patients also received genetic counseling, KEAPS also evaluated satisfaction with the genetic counseling experience.
Papers and Presentations from this study:
Women’s Experience of Genetic Counseling for Non-Invasive Prenatal Genetic Screening
Megan Allyse, Marsha Michie, Stephanie Alessi Kraft, Melissa Constantine, Cherie Rao. Poster at the Annual Meeting of the International Society for Prenatal Diagnosis, Washington, DC.
Women’s Assessment of Benefit in Pre-Test Genetic Counseling for Non-invasive Prenatal Testing
C. Rao, H. Kershberg, M. Constantine, S. Alessi, M. Michie, M. Allyse. Poster at the Annual Meeting of the National Society of Genetic Counselors, Pittsburg, PA.
Prenatal Information Research Consortium 