The Community Leaders, Advocates, and Stakeholder Perspectives (CLASP) study seeks to understand how noninvasive prenatal genetic testing (NIPT) will impact pregnant women, families, and other aspects of society. We are conducting interviews with advocates who work with communities of patients and their families who are affected by the genetic conditions currently detected by NIPT.
This study has closed recruitment. However, we have another study surveying representatives of patient advocacy and support groups. If you are a member of such a group and are interested in getting involved in research, please contact Megan Allyse at allyse.megan@mayo.edu.
This study is funded by the US National Institutes of Health.
Prenatal Information Research Consortium 