[Photo of woman's hand signing informed consent document]The PRenatal INformed Consent Evaluation & Synthesis Study (PRINCESS) is evaluated over 30 informed consent documents for non-invasive prenatal genetic screening. These documents were collected from 11 countries and a variety of sources, including individual clinics and large commercial test developers.

Papers from this study:

Marsha Michie, Stephanie A. Kraft, Mollie A. Minear, Roberta R. Ryan, and Megan A. Allyse. (2016) “I have read and I understand”: Informed consent documentation for noninvasive prenatal genetic screening. Journal of Medicine, Ethics, and Public Health. 

Presentations from this study:

In March 2016, we presented the completed results at American College of Medical Genetics and Genomics (ACMG) in Tampa, FL. NSGC Poster_final

We presented preliminary results from this study at the American College of Medical Genetics and Genomics (ACMG) meeting in Salt Lake City, Utah, in March, 2015.

[Click to open full size] If you landed here after viewing our poster at ACMG 2015 and would like to take a closer look online, click the thumbnail at left to view a larger image. For more information, to give us feedback on this project, or to request notifications about the eventual publication, please contact us.

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4 thoughts on “PRenatal INformed Consent Evaluation & Synthesis Study (PRINCESS)”

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